PATIENT STORIES

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Samantha M.

"What I want the world to know is that dysautonomia is so much more than a fast heartbeat. Even though you can't see it, it can be completely disabling."

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Tammy W.

"It is my hope that through our connection our voices will be amplified, heard, and seen, and more people will know what the face of this invisible illness looks like."

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Mike H.

"My memory has been seriously affected by this, and I have great difficulty with sequential thinking and following directions. The brain fog is terrible."

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Lauren S.

"For the first six months, I was told by doctors that this was anxiety and that I should try wind-sprints to fix it. I have found that slow and steady was a better way to deal with my dysautonomia."

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Shannon D.

"It is so sad that dysautonomia has been around for so long and that there are so few available treatment options for patients, to the point that they are often forced into living with very poor quality of life."

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Patricia A.

"From what I have personally experienced and witnessed of COVID-19, it finds all the cracks in your body's systems, the Achilles' heels, sticks a wedge in the weak points, and starts hammering."